The communication of pharmacogenetic research results: Participants weigh in on their informational needs in a pilot study

Parvaz Madadi; Yann Joly; Denise Avard; David C. Chitayat; M. Anne Smith; Colin J.D. Ross; Bruce C. Carleton; Michael R. Hayden; Gideon Koren

The communication of pharmacogenetic research results: Participants weigh in on their informational needs in a pilot study

Parvaz Madadi, Yann Joly, Denise Avard, David C. Chitayat, M. Anne Smith, Colin J.D. Ross, Bruce C. Carleton, Michael R. Hayden, Gideon Koren

Research output: Contribution to journal › Article › peer-review

9 Scopus citations

Abstract

In this brief investigation, the informational needs of research participants [n = 62; mothers who had breastfed, taken codeine, and participated in a pharmacogenetic study] were probed during a counseling session in which they received their CYP2D6 pharmacogenetic research results and overall study results. In addition to the standard information, developed by a multidisciplinary team and provided to the participants, 38% of individuals had further questions related to potential adverse effects in babies, future codeine or medication use, heredity, and consequences for policies and programmes. The diversity and complexity of the questions raised support the need to communicate the results in the context of personalized genetic counselling information sessions.

Original language	English
Pages (from-to)	e152-e155
Journal	Journal of Population Therapeutics and Clinical Pharmacology
Volume	18
Issue number	1
State	Published - 2011
Externally published	Yes

Keywords

CYP2D6
Codeine
Communication
Pharmacogenetics
Research results

Cite this

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AU - Madadi, Parvaz

AU - Joly, Yann

AU - Avard, Denise

AU - Chitayat, David C.

AU - Smith, M. Anne

AU - Ross, Colin J.D.

AU - Carleton, Bruce C.

AU - Hayden, Michael R.

AU - Koren, Gideon

PY - 2011

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The communication of pharmacogenetic research results: Participants weigh in on their informational needs in a pilot study

Abstract

Keywords

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