From hope to despair, and back: Being the wife of a patient in a persistent vegetative state

Yaira Hamama-Raz, Yonit Zabari, Eli Buchbinder

Research output: Contribution to journalReview articlepeer-review

25 Scopus citations

Abstract

In this study we examined the meaning of being the wife of a vegetative patient over time. The research was based on semistructured interviews with 12 wives of husbands who were diagnosed with persistent vegetative state between 1 year 2 months and 10 years prior to the interview. We found that there were two contradicting forces common to all of the wives across time. First, there was a process of finding significance in the situation based on acceptance of the husband's condition and focusing on positive emotions and values such as love, commitment, and loyalty. Second, the wives described an increase in negative emotions such as sadness, pain, loneliness, loss, and grief. These findings are discussed in the context of research and theoretical literature about coping processes and the meaning of caring for patients in a persistent vegetative state.

Original languageEnglish
Pages (from-to)231-240
Number of pages10
JournalQualitative Health Research
Volume23
Issue number2
DOIs
StatePublished - Feb 2013

Keywords

  • coping and adaptation
  • families, caregiving
  • illness and disease, chronic
  • relationships, primary partner

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