TY - JOUR
T1 - Feeling different
T2 - The experience of living with fetal alcohol spectrum disorder
AU - Stade, Brenda
AU - Beyene, Joseph
AU - Buller, Kathryn
AU - Ross, Shannon
AU - Patterson, Kayla
AU - Stevens, Bonnie
AU - Sgro, Michael
AU - Ungar, Wendy
AU - Watson, William
AU - Koren, Gideon
PY - 2011
Y1 - 2011
N2 - Background In Canada the incidences of Fetal Alcohol Spectrum Disorder (FASD) is estimated to be in 1 in 100 live births Caused by prenatal exposure to alcohol, the disorder is the leading cause of developmental and cognitive disabilities among Canadian children and its effects are life lasting. No research has attempted to describe the experience of living with FASD from the perspective of Canadian children. Purpose The main purpose of this study was to describe the children's experience of living with FASD. Methods A qualitative method was used to examine the children's experiences. Twenty-two (22) children, aged 6 to 18 years, living in urban and rural communities across Canada participated in an unstructured in-depth interview. Data was analysed using Colaizzi's qualitative method. Results For all children in this study, living day-to-day with FASD meant feeling different. Within this construct knowing the disability; feeling alone-feeling supported, and overcoming the disability were dominant themes which emerged. Conclusion Implications for practice and research have been described.
AB - Background In Canada the incidences of Fetal Alcohol Spectrum Disorder (FASD) is estimated to be in 1 in 100 live births Caused by prenatal exposure to alcohol, the disorder is the leading cause of developmental and cognitive disabilities among Canadian children and its effects are life lasting. No research has attempted to describe the experience of living with FASD from the perspective of Canadian children. Purpose The main purpose of this study was to describe the children's experience of living with FASD. Methods A qualitative method was used to examine the children's experiences. Twenty-two (22) children, aged 6 to 18 years, living in urban and rural communities across Canada participated in an unstructured in-depth interview. Data was analysed using Colaizzi's qualitative method. Results For all children in this study, living day-to-day with FASD meant feeling different. Within this construct knowing the disability; feeling alone-feeling supported, and overcoming the disability were dominant themes which emerged. Conclusion Implications for practice and research have been described.
KW - Children's experience
KW - Fetal alcohol spectrum disorder
KW - Qualitative research
UR - http://www.scopus.com/inward/record.url?scp=84856197317&partnerID=8YFLogxK
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C2 - 22042791
AN - SCOPUS:84856197317
SN - 1710-6222
VL - 18
SP - e475-e485
JO - Journal of Population Therapeutics and Clinical Pharmacology
JF - Journal of Population Therapeutics and Clinical Pharmacology
IS - 3
ER -